Charlie Gard's parents vent frustration during latest court hearing

by Antonio Miles July 11, 2017, 0:24
Charlie Gard's parents vent frustration during latest court hearing

The parents of baby Charlie Gard will have the chance to present fresh evidence that their son should receive experimental treatment, a High Court judge has ruled.

Charlie's parents, Chris Gard and Connie Yates, have until Wednesday to submit new written evidence regarding the viability of having Charlie treated overseas with experimental nucleoside therapy.

His parents, Chris Gard and Connie Yates, who are in their 30s and come from Bedfont, west London, want to take him to America to undergo a therapy trial.

Amid public outrage, the U.K. High Court this week agreed to give Gard's case a new trial in light of new evidence concerning nucleoside bypass therapy presented by two global hospitals.

Great Ormond Street Hospital had said in a statement Friday that while it is seeking the High Court's opinion about experimental treatment for Charlie, the concern is that it will be ineffective and ultimately prolong his condition. Mr Gard yelled at a barrister representing Great Ormond Street bosses, saying: "When are you going to start telling the truth?"

Ms Yates added: 'It's really hard'.

Francis, the judge, insisted there had to be "new and powerful" evidence to reverse earlier rulings barring Charlie from traveling overseas for treatment.

Ms Yates added that she hoped judges would listen to experts and "give us a chance".

Katie Gollop QC, representing Charlie's guardian, told the preliminary hearing in the Family Division at the High Court that his condition had not changed since the April ruling when Mr Justice Francis had said Charlie should be allowed to "die with dignity".

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Mr Gard interrupted to ask: "Why did you refer us to Harley Street then?", referring to the private clinic in London.

Great Ormond Street had said Charlie's mechanical ventilator would be switched off after the European judgment, but the hospital has since given the boy's parents more time to spend with him before this happens.

Yates told Daily Mail she was "heartbroken" over the hospital's initial decision to keep Mahoney out of her child's room.

The 11-month-old suffers from mitochondrial depletion syndrome, a rare genetic illness which leads to progressive brain and muscle damage.

Lawyers representing Charlie's parents said evidence indicated a "small chance" of brain recovery.

She said that if the medication works Charlie "could potentially be a normal boy again". Although he said that "no judge has a better understanding of the case" than he has, it was important that there was no "perception of unfairness" when the final decision is made.

Mr Armstrong said there was "encouraging" evidence.

According to The Telegraph, the London hospital has been forbidden from allowing the 11-month-old to travel elsewhere to receive nucleoside therapy because of a High Court ruling.

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